The Ugly Beautiful and Other Failings of Disability Representation
Those who spend their lives in bodies others deem unworthy grow accustomed to building our own self-worth.
It is deeply troubling for able-bodied people to learn that we find beauty and pride in ourselves, not in how we can most align with what nondisabled people think human bodies and minds should look like.
Often, though, this kind of reclamation is associated specifically with glamour and conventional beauty; Lauren Wasser, the model with the golden legs, or Mama Cax, a fierce Haitian model with cheekbones that could cut glass and a collection of stunning, bold prosthetic limbs, often in bright patterns and colors, sometimes minimalist and fierce, other times elaborate and lacy. Any one of them costs more than most amputees can afford.
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Experiencing a severe reaction to medication taught me many interesting things about the limits of my own body, but also the limits of the world around me.
It is not so much that these things are invisible as it is that people are trained to hide them, and society is conditioned to look away from them.
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I want to surround myself with people who argue with me, for I learn so much more from these conversations.
“Accommodations are things that we need, and deserve, in order to lead our lives. But they’re treated—we are treated—like we’re trying to pull one over on the rest of society.”