Finding a World Big Enough for My Twice-Exceptional Kids
Every day, when my kids come home from school, the first thing I ask them—like most parents do—is about school. But unlike most parents, I do not expect my kids to say that school was fine.
This is a monthly column by Katie Rose Pryal about family life, mental illness, and raising disabled kids as a disabled parent.
You’re face to face with greatness, and it’s strange
You don’t even know how you feel
PleasePlease tell Nine to be more aware
Be more aware?
playhang outcome over
If you could have only one wish, what would it be and why?
There were just too many wishes
You must dance to the beatYou only get one wish
We’re going to need a little more room
HereYou have space here, for now.
Katie's work has appeared in Catapult, Slate, Full Grown People, The Chronicle of Higher Education, and more. She’s the author of more than ten books, including the IPPY Gold award-winner EVEN IF YOU’RE BROKEN: Essays on Sexual Assault and MeToo, the INDIE Gold award-winning THE FREELANCE ACADEMIC: Transform Your Creative Life and Career, and the bestselling LIFE OF THE MIND INTERRUPTED: Essays on Disability and Mental Health in Higher Education. A professor of law and creative writing, she lives in Chapel Hill, N.C.
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I’m not looking for a cure—not for my kids, and not for me. Any treatment we choose is merely a tool to help us enjoy our lives.
I think about the many invisible struggles, the empty places I have had to fill for my kids. The bridges I’ve had to build.
Unwritten social rules might as well not exist for me. The only reason I can read them at all is because I’ve forced myself to learn them.
More in this series
For Parents and Children with Psychiatric Disabilities, the Stigma Creates an Extra Fight We Don’t Need
So many people have suggested I stop taking medication for my bipolar disorder, anxiety disorder, and panic attacks. The stigma is strong.
No one else can judge your practice. You must believe in the work that is in front of you, taking shape before your eyes.