What Genes Can’t Tell Us

“Who Else Has a Son Like Mine?” A Mother Searches for Other Parents Who Lack Medical Answers

How many days had we spent asking the same questions of God or doctors? How long had we wrestled with conditions that didn’t yet exist?

Mar 12, 2018
What Keeps Me Up at Night: How Do I Meet My Son’s Needs If I Can’t See Them?

This is where, for me, motherhood divided into ‘Before’ and ‘After.’

Feb 13, 2018
Living in the “Yet”: When Genetic Tests Don’t Reveal the Answers You Seek

As a mother, I’ve had to ask myself: What would never getting an answer, or even no longer expecting an answer, look like?

Jan 08, 2018
Why We Brought Our Son to the Pediatric Geneticist

Kids are all mystery, and mine are no different, but the unknown has especially marked my son.

Dec 04, 2017